My brother John Bunting (bunting.jr@gmail.com) ( needs online chat consultation about his worsening leg weakness resulting basically from kidney damage from his amyloidosis.
He seriously needs online help because he almost cannot speak intelligibly because of his cleft palate. His speech is almost totally unintelligible, even to me. Thus though his doctors and treatment are excellent, he is unable to speak normally vocally to them. And he is not informing them meaningfully about this now his primary and very serious worry: weakness in his legs. But he speaks totally effectively and intelligently online!
John is 74, of Quincy IL, a retired electronics engineer, having worked among other jobs for McDonnell-Douglas in St. Louis on the antennas for the Apollo spacecraft that went to the moon. Since retirement and as recently as two years old patientago, he was a primary Habitat for Humanity worker in the construction of seven H4H homes in Quincy. He has always exercised, until two months ago was still using his home walking machine several times daily, and earlier for intentional exercise almost daily rode his bicycle and worked out at Quincy's primary fitness facility. His home is a "cottage" in a superb retirement/healthcare complex: Good Samaritan Home; however his communication with the Home's medical staff is limited in the same way as with his doctors above.
He being treated primarily in Quincy by hematologist Karthik Koduru MD, (217) 223-8400 of Quincy's primary Blessing Hospital's cancer treatment clinic, with some connection to the Rochester MN hematology clinic. Happily, his CyBorD chemo (cycle #6 currently, will go to cycle#8 ending in August) has stopped creation of amyloid cells. But his leg weakness has progressed until he now must lift with his arms to get up from a chair, and use his arm to lift his leg into his car.
He is very concerned about swelling in his ankles. As a result, he is unwilling to do hardly any exercise, but spends almost all of his day either in his recliner (with laptop) with his legs raised or in bed.
His leg weakness is now his main worry. It breaks my heart when he tells me his big proud accomplishment is to walk the 200 yards to the dining room in the complex. It breaks my heart also that he is now clearly unable to play golf with me when I visit him or help me with chores when he visits me, customarily in September--
I believe he needs to get back to doing as much exercise as he is able to do. He needs your advice to encourage and guide him to do such exercise. I believe encouraging circulation in his legs by using/exercising them is more important than elevating them all day.
He is concerned about this also, and has just begun researching and using exercise, but only such as while sitting in his recliner, elevating his legs straight out above the footrest, and lifting them repeatedly!
I believe MD advice to encourage and guide him will be extremely helpful to him, and that he will follow your advice.
I suggest advice from a General Practitioner, or a Sports MD, might be more appropriate than a hematologist.
Would you please help my brother?
If necessary, I am willing to pay for your help to John.
He is:
John R. Bunting, 2130 Harrison St #48A, Quincy, IL 62301-6756
bunting.jr@gmail.com
Phone BUT USEFUL ONLY FOR TEXT, NOT USEFUL FOR VOICE: 217-316-6533

I am:
David R. Bunting dave8361@gmail.com 360-496-1435
114 Mountain View Drive, Packwood WA 98361