My infnat is 8 months old. He has many diagnosis without a real answer. He has been hospitalized most of his short life. He desaturates his oxygen when sleeping to the low 70's, without explanation requiring oxygen. Last sleep study showed 137 desaturations in 5 hours. and it did show various central apneas. back in February he had two different episodes where he wouldnt rouse to even eat and he wasnt reactying to anyone. Doctors who knew him persoanlly felt trying phenobarbital was worth a try. He is still on it. I took him yesterday to the hospital and they didnt draw a blood level on his meds, they took no labs no tests and the nuerologist whom I met once called and said since he looks okay after these episodes he doesnt think its seizres and to go home. With that being said he began last tuesday doing what looks to me like a seizure or convulsing, they last 3 to 10 seconds and they appear to come in clusters. when they begin they are back to back up to 10 or 15 times an hour all day long then nothing for 4 days or so then he does it again. The nuerologist who called and sent us home never examined my son and did NOT watch the video.
my question is do you think there is cause for worry with these episodes cause they are very disturbing to me.
also the night before he has had 2 bad days of this in the last week his resting heart rate was noted by the night nurses to linger in the LOW 40'S for 7 minutes or 4 minuters and they said he was very hard to rouse.